Project work


The project

The participants are divided into 12 groups of between 3 - 5 people to develop a short project during the duration of the programme.

The purpose of the project is to help participants think through the practical implications of applying case management approaches to facilitate and enhance the care of children with cancer and the impact on their families, friends and lives in general.

Groups pick from the list of possible topics below or alternatively develop a topic of special interest to the group:


Project topics

1. Overcoming inter-agency barriers: Map the agencies or organisations potentially involved in the care of a child with cancer or their family; outline the potential barriers to the management of care across these inter-agency boundaries and suggest three strategies for over coming these barriers

2. Overcoming re-imbursement barriers: Map the potential problems in the financing of case management programmes in pediatric cancer; outline the key financial concerns likely to be expressed by managers and staff in participating organisations and suggest three strategies for over coming these concerns

3. Overcoming communication barriers: Map the potential agencies and professionals who would be required to share information for case management to work; outline the key ethical and legal concerns likely to be expressed by managers and engaged in the process and suggest three strategies for over coming these concerns

4. Multi disciplinary / agency assessment: Map the physical, pschological and social issues which could potentially impact on the care of a child with pediatric cancer, develop a simple assessment questionaire (max 21 questions) which would help staff understand the full picture of a childs circumstance and outline the key issues which would need to be addressed for such an assessment to be implemented

5. Case manager job description: Outline the professional staff who could and should take on the role of a case manager, set out five key responsibilities they would have over and above their normal role, set out the key barriers to establishing such a role in your organisation.

6. Evaluation and quality assurance: Map out the key objectives you feel a case manager should be aiming to achieve, set five performance indicators you feel would demonstrate if the role was working or not, Suggest who should monitor the work of a case manager and why.

7. Case conferences: Map out the types on clinical, family or social issues which might requier agencies or professionals to come together and discuss an individual case; outline who might attend a case conference and what their roles and responsibilities might be; set out how the discussions in a case conference might be recorded and acted upon.

8. Child protection: Outline the types of situations which may trigger an intervention wherby professionals might intervene in the care of a child and over-ride the wishes of parents; Map out the ethical and legal difficulties surrounding such an intervention, set out five criteria that might be used to decide whether to intervene or not.

9. Managing shifts in goals of care: Describe the process by which the providers caring for a child adapt the child’s case management plan to rapid or significant changes in the child’s condition (for example, relapse). Outline the process by which these shifts will take place (such as a communication plan or team meeting) and which staff will be assigned to various tasks. These tasks could include communicating with extended family, assessing new social/financial needs of the family to help them cope acutely, and the like.


Completing the project

The groups had around one hour allocated each day in days 1, 2 and 3 to work on their project. Each of the topics above are divided into three parts. Broadly speaking groups were thinking through the issues and present their findings in a short presentation to the rest of the group on day 4, during 5-day International Conference.