Program activities

 

The two-year program is implemented through the following steps:


1. Organise SenTAG (Senior Technical Advisory Group) meeting with representatives from all the four participating countries and the various professions: oncologist, nurse, social worker, parents’ representation as well as international expert on case management to develop standards in case management for pediatric cancer patients and create a locally adapted and validated curriculum for case management training, based on in-country needs.

 

2. Create teams and identify partner institutions in four countries. Establish 12 multidisciplinary teams with balanced representation of the professions that will be actively involved in the case management process of pediatric cancer patients.

 

3. Organize a practice-based international training for the multidisciplinary teams in the Pediatric Oncology Centre of University Children’s Hospital in Krakow, Poland. The Program trained 48 health and social care providers from around the region over five days in the essentials of pediatric cancer care and treatment including the principles of case management. The training was conducted by a faculty of international and national trainers representing current knowledge and best practices in childhood cancers. The program focused on practical aspects of case management with 20% theoretical, 60% practical applications case studies and project work and 20% on the training methodology to enable the participants to roll out the training to their colleagues in their institutions.

 

4. Evaluate and adapt the curriculum, based on participant and trainer feedback, lessons learned from the training.

 

5. Assist the teams to establish a case management network of health and social service professionals and establish a method for monitoring and evaluating the network’s activities. The participating institutions are mapping the available services for patients and their families and create and distribute a booklet of these services to better inform patients and their families of the existing support. A website and online professional forum will facilitate the exchange of experiences and best practices among the institutions from the region.

 

6. As a final step, disseminate curriculum, findings, recommendations as well as the information booklet with the available services for the patients.